Since 2013, PCV has worked to educate and expand the network of Vermont's medical providers who support terminally ill patients who want a choice at the end of life using Act 39. ​

We are very pleased to welcome Audrey Winograd to our team.

​Audrey is a lawyer and hospice-trained medical social worker with experience in neurology, oncology, chronic disease, and end-of-life care. She holds a law degree from Rutgers University, a Masters in Organizational Development from the University of Pennsylvania and a Masters of Social work from the University of Vermont. Audrey brings 40 years of experience in the field of organizational and community work, personal empowerment and patient-centered care. As a medical psycho-therapist she empowers clients to enhance one’s lived experience today, while engaging in shared decision making for tomorrow.

​(April 13, 2022 - Montpelier, VT) Patient Choices Vermont and Compassion & Choices praised the Vermont House of Representatives for their preliminary approval Thursday of Senate Bill 74 to update and improve the state’s 2013 Patient Choice at End of Life Law, Act 39. The Vermont Senate passed the bill on a voice vote on Jan. 25. 
​

Over the course of a few days, my mother, PCV co-founder Ginny Walters, said goodbye to family and friends, drifted off to sleep and died peacefully. She was 96.  

Ginny’s extensive computing and organizational skills and her ability to write cogently and clearly were instrumental in launching and sustaining Patient Choices Vermont during the eleven-year legislative campaign from 2002 to 2013. While my father, Dick Walters, was the outspoken face of PCV, Ginny provided the backbone, editing the website, running a meticulous supporter database, coordinating volunteers and editing every piece of writing that went out the door. Even a few days before she died, Ginny was still sending me articles that she thought we could post on the PCV Facebook page. 

Ginny was a physicist, one of the first women in the US to earn her PhD in this demanding science. If you’d like to learn more about her, Click Here for the website her family has created in her memory.

If you knew Ginny or worked on the campaign with her, and have a story to share, please go to the Add Your Story Here page on her website. Then check back to see memories other people have shared.

Ginny requested that if people were so inclined, donations be made in her honor to either Patient Choices Vermont or Planned Parenthood of NE.  

Thanks so much for your participation as we carry forward the work launched by Dick and Ginny Walters.

​Sincerely,
Betsy Walkerman, President

PCV wishes to thank Senator Ruth Hardy for her presentation of the bill on the Senate floor and her deeply knowledgeable responses to questions. We also thank Senator Ginny Lyons and the members of the Health & Welfare Committee for their careful consideration of the bill. Thanks as well to the bill sponsors, Senator Richard McCormack, Senator Ginny Lyons, Senator Alison Clarkson, and Senator Michael Sirotkin.

Special Thanks to Willem Jewett

At the end of December, Former Representative Willem Jewett contacted PCV offering to share his story with the hope that it would help with passage of S.74. Willem Jewett was majority leader in the House of Representatives in 2013 and played a critical role in the passage of Act 39. We were very sad to learn of his rapid decline from cancer. In his last weeks, he made a priority of continuing his advocacy, while he prepared to use medical aid in dying himself. Our deep condolences to his family and friends. 

In early January, we recorded this conversation which was quoted on the Senate floor, and brought the importance of S.74 to a personal level.

​PCV was instrumental in connecting Willem Jewett to reporters at VTDigger, resulting in these two articles:

• Vermont lawmakers are considering changes to the state’s aid-in-dying law. A former colleague, now terminally ill, says they’re necessary.
• ‘Forza’: Willem Jewett, former Vermont House majority leader, remembered as ‘a force’ — in the Statehouse and on the trail

This press blossomed into a number of additional articles in Vermont media and in the national news. ​Thanks so much to all of you who wrote to your senators in support of S.74. Stay tuned for news as we work through the process in the House.

​Who is the tough-looking team in this New York Times photo from 2005?

Standing behind my father, Dick Walters, are Dick Austin, MD, Carmer Van Buren, MD, David Babbott, MD, and Ginny Walters, PhD (co-founder of PCV). As Ginny writes today (at age 96), “Having MDs who became active in the campaign in the beginning of PCV’s work was really meaningful. Dick Austin wrote really good letters to the editor citing his experience as a physician. He never minced words." The NY Times article quoted Dr. Austin as saying, "I've seen some of my friends here die rotten deaths." He cited the long periods of heavy sedation and misery for terminally ill patients and their families. 

Dr. Dick Austin died at the age of 99 this past week.  

The New York Times article also included a picture of Dr. Diana Barnard, who spoke passionately about the need for Act 39 in the early days of the campaign. Dr. Barnard continues to serve on PCV’s Board of Directors, as does Dr. Jaina Clough, both palliative care physicians in the UVM Health Network.
 
We take this moment to honor these doctors.

Throughout PCV’s history, both practicing and retired doctors served on our Board of Directors and Advisory Board, including Dr. Don Robinson, Dr. Charles Gluck, Dr. Stephanie Barnes, and until this past summer, Dr. Fred Crowley, a retired radiologist and past president of the Vermont Medical Society.    

Medical aid in dying is now widely available in Vermont.

Dozens of physicians across the state have prescribed medical aid in dying under Act 39.  Oncologists and neurologists, along with palliative care doctors, being the specialists who serve the majority of terminally ill patients who qualify under Act 39, have the most experience.  

At the same time, many physicians are just now being asked by patients about medical aid in dying for the first time. That is often why it takes several conversations for people who are interested in  Act 39 to elicit a commitment from their physician to prescribe. Multiple discussions build trust in the relationship and confidence on the part of the doctor that the patient is making a well-considered and informed decision.

​Betsy J. Walkerman, President

​Many thanks to all of you who made contributions in response to Patient Choices Vermont's (PCV's) Spring Fundraising appeal. With this strong community behind us, we can continue to offer a wide range of educational services and work to streamline Act 39. If you missed our spring communications, you can always donate online or by mail.

​Patients and families who contact Patient Choices Vermont to learn more about medical-aid-in-dying almost always tell us how important and supportive their hospice nurses (and volunteers!) are. We deeply appreciate all of those who help provide hospice services. During discussions about end-of-life options including medical-aid-in-dying, Patient Choices Vermont always recommends the inclusion of hospice nurses as they are close to the patients, knowledgeable and compassionate, and able to serve as a trusted resource for discussions about end-of-life care and choices.

To support their services and expertise, PCV has been making the rounds to Vermont’s hospice programs to offer an update about what’s happening with Act 39 in Vermont. Here’s what’s included in PCV's 2021 Hospice Training and Update Programs:

• New medication update
• Proposed changes to Act 39 currently in the Vermont legislative pipeline
• A "what Act 39 is and what it isn’t” review of the law’s requirements for both new and experienced nurses and volunteers
• An opportunity to discuss situations on which participants would like guidance

If you would like to schedule an educational session for your hospice organization, contact Toni Kaeding MS RN.

Toni Kaeding, MS RN, PCV Board Chair, is a nurse whose work has spanned clinical, academic, administrative, and policy positions in Vermont. She retired from the University of Vermont where she held both faculty and administrative appointments in the College of Nursing & Health Sciences. She was founding Director of the Freeman Scholars Program. In 2012, Toni was named recipient of the Founder’s Award by the Vermont Medical Society. She enjoys cross-country skiing and running and lives at the end of the road with her family in Worcester, Vermont. Toni handles the many calls PCV receives from patients and doctors. She helps educate students and community members.

​People from all walks of life are drawn to volunteering with PCV, offering expertise, time and energy.

Barbara Deal: If you have made a contribution to PCV in the past couple of years, you have received a thank-you card from Barbara Deal, a resident of Bristol, VT. Barbara was Director Addison County Hospice in the mid '90's and has a long-standing belief in encouraging people to say what they want the end of their lives to be like. She commented, "It has been an honor to serve PCV in this limited but sincere way. I have two dear friends who chose to use Act 39 and I am full of gratitude to PCV who made their choice possible."

Ann Crocker: Many thanks to Barbara as she now passes this responsibility to Ann Crocker. As Ann says, "It is an honor for me to be able to contribute to Patient Choices Vermont by thanking our donors. Each donation supports the very important work of educating Vermonters so that people who terminally ill are aware of Act 39 and the choice that it offers."

Nancy Hawley: Nancy is a business consultant specializing in business processes, systems, and information and accounting solutions. She has supported various aspects of PCV’s work since its founding in 2002. She recommended, configured and continues to maintain PCV’s supporter database. Her expertise in business data systems helps provide PCV with intelligent information for planning our fund-raising campaigns, and communicating effectively with donors. Thank you, Nancy!

Jonathan Crocker: Jonathan helps fine-tune PCV’s communications, providing editing services and expertise in story-telling for PCV videos. He also tracks donations and keeps the supporter database accurate and up to date. Jonathan says, “I am humbled and inspired by the people whose stories I have encountered in this work; by both their courage and their generosity in sharing such deeply emotional journeys. Like them, I hope these stories help spread awareness of the value of medical-aid-in-dying, and can help others through the experience.”

​New Mexico’s new medical-aid-in-dying law just went into effect. Named for Elizabeth Whitefield, a long-time Albuquerque family law judge and attorney who did not live long enough to testify on behalf of the bill in 2019, the new law brings the option of support for peaceful death to New Mexico residents.

New Mexico is the tenth U.S. jurisdiction to enact a death with dignity law.