 Peggy Stevens We receive a variety of messages from our supporters that let us know our work has had a significant impact on their lives. Here's a recent example: "I watched every video on the PCV website. It gave me great comfort and knowledge about what to expect as my husband and I navigated the Act 39 process." ...from a recent thank-you note. Watch: One of the most-watched videos (with over 500 views) is that of Peggy and Samantha Stevens in our Living While Leaving series, sharing their loving memories of Eric Stevens during his journey using medical aid in dying. Speaking Engagements: On Sunday, April 7, Peggy Stevens spoke at the Universalist Unitarian Congregation in St. Johnsbury. A warm and engaging speaker, Peggy shared her personal experience during the time when her husband Eric's health was declining from a neurological disease. She discussed how they had to make a transition from looking for cures to planning what they hoped would be a peaceful death. Peggy's story is about living life fully while accepting the inevitable end of life.  Dr. Diana Barnard Report from the Field:
During this past week, PCV representatives Dr. Diana Barnard, Betsy Walkerman, Francesca Arnoldy and Marnie Wood led and participated in discussions at two public forums. Dr. Barnard discussed hospice and palliative care at the Gerontology Symposium hosted by the Center on Aging at the University of Vermont. Francesca Arnoldy led breakout sessions on the role of an end-of-life doula. "I was able to discuss the process of Act 39 as I described the kind of emotional support a doula can offer," says Francesca. "Focusing on individual choice is paramount as a doula assists with gathering information so clients can make their best decisions." Marnie Wood reported that attendees appreciated the PCV brochures and the chance to talk with people who have been through medical aid in dying with a family member. In the circle I led, as part of Death Talks during Public Philosophy Week, a major topic raised by attendees was how to support people who do not want to linger with severe cognitive decline. We will be posting more information about that on the PCV website soon. Our Upcoming Work: PCV speakers will be leading two discussions in the next month. One will be at the Caldwell Law Group in Lebanon, NH, which serves Vermont and New Hampshire clients with estate and end-of-life planning services. The other event is intended to provide information on Act 39 to the Brown Alumni Association of the Upper Valley. Sorry, but both of these are private engagements. Your Opportunities: If you are connected with an organization that would like to have a discussion about medical aid in dying, please contact us. These discussions are about life, making decisions, establishing connections, and about personal autonomy in navigating the challenges to your fundamental civil liberties. Every person who learns about end-of-life choice and talks about it with their doctor, helps to anchor this civil liberty firmly in our Vermont community.
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Hosted by Wishbone Collective and Patient Choices Vermont UVM's 3rd Annual Public Philosophy Week was first launched in 2017 to bring discussions out of the academy and into the public square. New in 2019, is a series of seven discussions on death and coping with grief, organized by UVM alumnus Alexandria Kerrigan, a recent graduate of the university's End-of-Life Doula Program.
The Death Talk Philosophy Week series begins on Sunday, March 24 at 2 pm with Krista Beth Atwood, former pastor of the Faith United Methodist Church in South Burlington, leading off with "Is there Life Without Death?" There are seven daily events at various times, covering a diversity of death topics featuring different speakers including Betsy Walkerman, president of Patient Choices Vermont, on Tuesday, March 26 from 6-7 pm leading a discussion on "ACT 39 and Death with Dignity." Join us for seven days of Death Talks during Public Philosophy Week at the Wishbone Collective!
Death Talks provide a safe place for open dialogue and the philosophical exploration of themes such as mortality, the afterlife, spirituality, cultural practices, history, individual experience, and more. Death Talks is not a personal support group nor a counseling session.
Wishbone Collective is located at: 4 West Center Street, Winooski, Vermont Monday, March 25, 2019
Hilton Hotel, Burlington, Vermont The Gerontology Symposium is a conference designed to enable participants to gain knowledge pertaining to a key areas of caregiving for older adults: End of Life Care and Transitions. The symposium also seeks to strengthen the connections between family caregivers and professionals. This year, topics will include:
What Really Matters: 7 Lessons for Living from the Stories of the Dying The Center on Aging at The University of Vermont is pleased to present this program whose goal is to provide current, research-based information on topics relevant to both family and professional caregivers who work with our rapidly growing population of older adults. For the second year, the conference will offer two different tracks:
Registration Fees Professionals: $35 Family Caregivers: $20 (discounted registration is intended for those caring for family members) Continuing Education credit: add $20 Click for more information and to register...  The idea of bringing people together to talk about death was originated by Swiss sociologist and anthropologist Bernard Crettaz who organized the first Café Mortel in 2004. The idea spawned an international Death Cafe movement with more than 6,000 hosted so far by various organizations around the world.
Here in Vermont, the movement to socially de-stigmatize talk about death and dying is well underway, with many events over the past few years. In August 2018, Alexandria Kerrigan, a recent graduate of the University of Vermont's End-of-Life Doula Program, launched the first Winooski Vermont Death Café and has hosted six monthly events since, renaming the concept as Death Talks last December. Death Talks provide a safe place for open dialogue and the philosophical exploration of themes such as mortality, the afterlife, spirituality, cultural practices, history, individual experience, and more. Death Talks is not a personal support group nor a counseling session. On Wednesday, January 23 from 6-8 pm, Betsy Walkerman and Francesca Arnoldy of Patient Choices VT will present a session regarding Vermont's Medical Aid in Dying Law (Act 39).
Alexandria Kerrigan holds a Bachelor of Science Degree in Education and is pursuing a masters in social work. She has been interested and comfortable with the topic of death since childhood and has extensive personal experience with grief and loss. The Wishbone Collective hosts and sponsors monthly Death Talks in alignment with their mission to create a unique community space for all. RSVPs are not necessary but you can do so while sharing the event with friends at the Facebook event Page: Death Talks featuring Patient Choices Vermont: Act 39 Seminar. Thanks for considering attending this community outreach event,  Sunset on Mt. Mansfield "I would like to do anything I can to help Vermonters understand the gift of having Act 39. One of the gifts I'm only now recognizing is that it gave me the ability to grieve before my husband died - and the same for him. For nine months, we spoke only our truth to each other, and flirted, and cried, and found a way to believe that we would not be separated." - Susan G. Dear Friends: Those eloquent words from a grateful supporter made me pause, read them again, and let my heart absorb their full impact. Whenever PCV receives thanks like this, I know how important our work is. Together, we share an effort to be informed and ready to contribute to end-of-life choice discussions with our friends. This year we celebrated the 5th anniversary of Vermont’s Patient Choice law by fostering those discussions and advancing the future of Act 39 on several fronts. From One to None… to Six Pharmacies! Since the enactment of Act 39 and until last January, we had just ONE pharmacy in Vermont filling medical-aid-in-dying prescriptions! Then, we learned that the only participating pharmacy would cease filling Act 39 prescriptions as a result of new corporate ownership. For several weeks there were NO pharmacies in Vermont available to fill medical-aid-in-dying prescriptions. The PCV board immediately established an initiative to achieve pharmacy coverage across the state and by February, we were able to convince the one pharmacy to resume filling prescriptions. Realizing the vulnerability, we began work to add pharmacies to the list and are now at SIX pharmacies ready to serve Vermont’s end-of-life patients - an essential component that helps to solidify Act 39. No organization but PCV would have addressed this vital pharmacy issue! We also clarified with Dartmouth Hitchcock Medical Center’s administration that Vermont-licensed doctors in their network who practice in Vermont can indeed assist Vermont patients under Act 39 - a very important development for communities along our eastern border. 2018 was a Year of Big Accomplishments! Please consider what End-of-Life Choice means to you. Your financial support is what enables our focused and dedicated work. We Achieved a Major Cost Reduction in End-of-Life Prescription Drugs! In February, PCV Board Member Dr. Diana Barnard spearheaded an effort to confirm that an effective, lower-cost medication was available. She educated doctors and pharmacists about the specifics, thereby reducing the cost of the drugs to less than 20% of what was previously available. Family members have confirmed the ease and peaceful use of this new option. In 2018, PCV’s Message Reached Thousands. Our public outreach touched people across the State and the nation as we honored legislators in Montpelier on the Fifth Anniversary of Vermont’s End-of-Life Choice Law. An interview on VPR’s Vermont Edition, a 3-part feature on NBC’s Channel 5, numerous articles and public forums and the presentation of a one-act play on love, life and dying helped deliver our message. Medical Community Education and Support: Step-by-step, we are nurturing the medical community to make medical aid in dying simply another treatment option that doctors routinely discuss with patients nearing the end of life. This year PCV board members had leadership roles in five educational seminars for doctors, medical institutions and conferences. These were important opportunities for professionals to discuss and learn about patient counseling and Act 39. Based on our survey early in the year, over half the hospice organizations in Vermont have now conducted training sessions on medical aid in dying. PCV is frequently called upon for information by doctors and caregivers, as well as patients. Legislative Leaders Educated: PCV meets regularly with legislators who chair or serve on House and Senate committees that were vital to the passage of Act 39. We work to educate them on the value of Act 39 and the importance of end-of-life choice to their constituents in order to be prepared in case legal challenges emerge. Vermont Continues to Have a National Influence: This year, PCV board members have assisted advocates in other states and testified in New York and Hawaii. Vermont doctors were also influential in the recent policy shift of the American Academy of Family Physicians to a “neutral” stance on medical aid in dying. Each additional state that allows medical aid in dying builds greater support for end-of-life choice within the medical community. PCV is continually protecting your right to have a choice! As a community, PCV is successful because we all remain focused, persistent, and dedicated for the long term. We want you to know that every donation is deeply appreciated and carefully managed. Please mail a contribution to: Patient Choices Vermont P.O. Box 671 Shelburne, VT 05482 ...or donate online where you will see a number of ways to give, including stock donations and gifts honoring people for whom end-of-life choice was important. It takes almost $60,000 per year to keep Patient Choices Vermont operating! We are a 501(c)(3) non-profit, so your contributions qualify as tax-deductible. Please consider a donation of $60, $30 or if you are able, $125, $500, or $1,000. As one supporter recently said, Act 39 allows us to replace fear and uncertainty with a sense of calm, greater peace and comfort near the end of life. Thank you. With gratitude,  Betsy J. Walkerman
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